Become an Advocate 

The Illinois Breast Cancer Advocacy Coalition

The Illinois Breast Cancer Advocacy Coalition is a group of breast cancer advocates representing a diverse set of non-profit, community, academic and government agencies across the State of Illinois.  The Coalition’s mission is to reduce breast cancer mortality,  achieve health justice for all persons at risk of and living with breast cancer and  move the needle on reducing Breast Health Care disparities for women of color and women  who are uninsured/underinsured. The Illinois Breast Cancer Advocacy Coalition believes in:

  • Health justice as a human right for all persons impacted by Breast Cancer including minority populations, uninsured and underinsured
  • Collective action, coalition-building, transparency and accountability for driving policy and system changes that improve breast health outcomes for all
  • Community Organizing to directly address disparate breast cancer outcomes across the breast cancer continuum

The ultimate vision of the Illinois Breast Cancer Advocacy Coalition is a world where lives and communities are not threatened by the breast cancer epidemic, made worse by policy and systematic injustices, and where everyone has equitable access to quality care at every point along the breast health continuum of care. Finally, all breast cancer survivors will have access to quality and compassionate services at every point of the breast cancer continuum of care.

In the spring Komen Chicago teams up with members of the Illinois Breast Cancer Advocacy Coalition Springfield for the Annual Advocacy Day. Advocates meet with elected officials to educate them on the importance of IBCCP to their communities.  The trip is open to anyone who is passionate about health equity and reducing the disparity in breast cancer mortality for women of color.

 

On May 7, 2019 Komen Chicago staff and members of the Illinois Breast Cancer Advocacy Coalition met with state legislators to advocate for access to high-quality breast health services regardless of insurance status and ability to pay.

 

 

 

These were the priority issues in 2019:

  1. Adequate Funding for the Illinois Breast and Cervical Cancer Program (IBCCP). We ask our legislators to support IBCCP funding to draw maximum federal match and make system improvements to ensure the highest quality care for all Illinoisans. Since 1995, the Illinois Breast and Cervical Cancer Program (IBCCP) has offered free mammograms, breast exams, pelvic exams and Pap tests to eligible women and allows eligible women diagnosed with breast or cervical cancer to receive treatment through Medicaid.
  2. Access to Diagnostic Mammography Services Senate Bill 162 ensures that diagnostic mammography services are covered by insurers just the same as ultrasound or breast MRI imaging modalities in Illinois. As of May 30, 2019, SB162 has passed in both the House and the Senate is awaiting Governor Pritzker’s signature.
  3. Access to Data from the Illinois State Cancer Registry (ISCR) Researchers currently face overwhelming obstacles while attempting access cancer registry data in Illinois. Effects of these access barriers stifle the progress of cutting-edge research and the flow of research dollars into the state.
  4. Implementation of BEST Act and Mammography Quality Act: PL99-433 The Breast Cancer Excellence in Survival and Treatment (BEST) Act and the Mammography Quality Act were passed in August 2015, yet facilities and advocates are not aware of any Department of Healthcare and Family Services policy implementation plan.

 

 

Downloads

Post Passage Disparities Bill Backgrounder – May 2015
21st Century Cancer ALERT Act
The EARLY Act
Key Legislation in the 111th Congress
Consumer Fact Sheet Coverage for Breast Cancer 7/2/09
Hard Copy LAH HMO Complaint